The latest from the New Brunswick Institute for Research, Data and Training

Lunch and Learn: Data Privacy: Linking to Administrative Data, is Consent Necessary

Author: Donna Curtis-Maillet

Posted on May 12, 2021

Category: Events

Many of us are becoming increasingly familiar with provincial legislation allowances for the disclosure, access and use of pseudonymous (i.e., unique identifiers removed) personal information for research purposes. We are not however, always as familiar about consent requirements. While the privilege exists for receiving a consent waiver when accessing and using administrative data, this privilege does not always apply.

Consent requirements must be compliant to ensure timely access and appropriate use of administrative data to inform research. This session provides an overview of why and when consent is required with respect to administrative data. In particular, the session provides guidance and examples on how to obtain informed consent when seeking to link administrative data to other data sources such as clinical trials, questionnaires and surveys, biobanks, etc.

Learning Objectives:

  1. Understand why consent is required when accessing and using administrative data for research
  2. Identify when during the research project consent should be obtained
  3. Become familiar with how this consent can be obtained

Missed this session? Don't worry, it was recorded and is available for viewing here:

Video transcription

We also have included an Administrative Data Linking Consent Wording tool that you can view here.

Voir la version française du document rédaction d’un consentement éclairé au couplage avec les données administratives ici.




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