Co-designing Dementia Care in New Brunswick: Building the Future Together| MEKTU | NB-IRDT | UNB

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NB-IRDT

Co-designing Dementia Care in New Brunswick: Building the Future Together

Lead organization: UNBSJ and Horizon Health

Principle investigator(s): Dr. Shelley Doucet and Dr. Pamela Jarrett

About the project:

The issue

Our research project aims to improve health and social care providers’ knowledge of how to communicate a dementia diagnosis and provide support in the 12 months following the diagnosis to persons with dementia and their care partners. In addition, we aim to increase the knowledge and use of existing services and supports for persons with dementia and their care partners.

The importance

Approximately nine people are diagnosed with dementia each hour in Canada. In New Brunswick, there are 15,000 people living with dementia with unique needs that change over time. Our previous research highlights that persons living with dementia and their care partners often find dementia care uncoordinated and difficult to navigate. Health and social care providers also face challenges around diagnosing and supporting their growing number of patients and families affected by dementia.

What makes this project different

This project involves a collaboration across 5 countries: Canada (New Brunswick, Ontario, Quebec), Australia, the Netherlands, Poland, and the United Kingdom. In each country, persons with dementia, care partners, and health and social care providers are involved as members of our co-design teams.

Branding, website, resources, and promotional activities are being developed using insights from formative research with our target audiences and input from our co-design teams.

Together, we will be using the developed resources to conduct a campaign called ‘Forward with Dementia’. Key messages will include, ‘find your way forward with dementia’, and ‘your next steps start here’.

Anticipated impacts

We anticipate the campaign will improve health and social care providers’ knowledge of how to communicate a diagnosis and offer post-diagnostic support. In addition, we anticipate that this project will enhance awareness of services and supports for people with or at risk of dementia and their care partners.

We anticipate that sharing the results of this project will help others to implement similar projects in their area (e.g., in other provinces or countries).

Strong local and international partnerships are being formed during this project and we anticipate this will lead to future local, inter-provincial, and international research initiatives.

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